On or Off...

Krissy asked me if I had updated the blog lately . . . .and of course, I had not. She wanted me to update everyone on where we are at with the research. And Krissy has begun to have seizures again . . . I guess the after surgery "honeymoon" is over. Of course we have to remember to keep the magnet with us...oops! Every time she has a seizure we are suppose to run the magnet over her head so the device will mark the EEG.

Well, we are in Virginia tonight. I guess we will be coming here every other week for awhile. Tomorrow is the day that the official "research" begins...the doctor will either turn the device on or off and we will not know which. After four months of the "blind" research her device will be turned on.

In the last couple of days Kristina has had some problems with her vision being a little blurry. However, she is suppose to wear her reading glasses and doesn't...but it has been somewhat worse. She is going to talk to the doctor about it tomorrow and she is going to the eye doctor next week to have her eyes checked. I think she is just a little concerned since it has been different since the surgery. Please pray that this is just ordinary, getting older, eye issues as opposed to a side effect of the surgery.

Other than her eyes, Krissy has been doing really well since the surgery. We are still adjusting to the process we have to go through with downloading into the computer and remembering to transmit the information from the computer through the phone lines. But we will get better as time goes on.

We look at our time traveling to Virginia as an adventure these days. It gives us alot of time to talk about everything, and we sing to all our CD's. We took a different route today to keep the trip from becoming monotonous. And I didn't even get lost!

As always, we do covet your prayers! We feel truly blessed for having so many wonderful friends and family!

Wait patiently for the Lord. Be brave and courageous. Yes, wait patiently for the Lord. Psalm 27:14

Happy New Year!

Here we are in a brand new year with new challenges and adventures! Today was Kristina's first follow up visit since surgery. She has been doing extremely well since the surgery and has had only three small seizures since then (all three the day after surgery.) Yes, that has been a good thing for us, however it is not because of the device. The device is still in adjustment stage and is having to "learn" Kristina's brain waves. The surgeon believes it to be a "honeymoon" stage after the surgery; because of the trauma to the brain during surgery she unexplainably has no seizures. (Of course this also happened for few weeks after the first surgery.)

Today the doctor took the staples out of her head. She was glad to have that done! The doctor also adjusted the device and prepared it for the beginning of the research stage. On her next visit, January 15, the research begins. However we will not know whether or not her device is turned on for the first four months. It is amazing to realize how much this little device in her head is capable of doing! We just continue to pray that this device is the answer to making Kristina seizure free!

We will be taking many, many trips to Virginia this year as they continue to monitor her progress closely. We ask that you continue to remember us in prayer. We know that Kristina would not be doing as well as she is today had it not been for the fervent prayers of so many of God's people.
I will make every effort to keep the blog updated as we progress in this research adventure.

Faith is the confidence that what we hope for will actually happen; it gives us assurance about things we cannot see. Hebrews 11:1 NLT