Once again...it has taken a long time for me to update the blog. I guess it was that feeling of "no news to share"...yet I forget that I do not talk to everyone often enough to keep you updated. Therefore, I apologize.
We were in Virginia today. One of many trips in the last two years. Yep, we realized today that we started our trips to Virginia in the spring of 2006. Wow...doesn't seem that long ago. But today was the last visit as part of the "blind" portion of the research project with the implant. Next visit (May 6) they will be turning on the device...(and now I find out we may not know whether it has been on or off for this blind period). I realized today that knowing the device will be turned on is frightening for Kristina. I guess it is the realization that if the device has been off for this time period that would explain the continual seizures...but once we know it is on ...what if the seizures continue. What then?? Boy, so many possibilities.
This time of not knowing and just continuing to go along with whatever we are told to do has been a test of patience and faith. We found ourselves the first few weeks trying to figure it out..."hmm, a good couple of days, maybe the device is on." And then Krissy would have a huge seizure and blow our theory. It didn't take long before we decided we just weren't suppose to figure it all out . . . .we had to just go along "blindly" and wait and see. (I guess that's why they call this period of time the "blind" test . . . lol) So, we adopted a new theory . . . just live each day God has given us to the fullest. We are not to worry about tomorrow and do not know what tomorrow will bring. Amazing the lessons you can learn through the challenges and trials in life. Jesus tells us in Matthew 6:34 (the Message) "Give your entire attention to what God is doing right now, and don't get worked up about what may or may not happen tomorrow. God will help you deal with whatever hard things come up when the time comes." Amazing instruction, yet it continues to amaze me how we forget so fast! Kristina and I have decide we don't want to miss out on anything God has in store for us just because we are afraid of what might happen. Yes, Krissy continues to have seizures and sometimes they are not in the most convenient places . . . .like in the car, or during church, or while teaching a class of children. But, this is our life and I am very proud of Krissy for making the most of it and not letting it control her! She is definitely my hero! Don't get me wrong, she would love to be able to drive and work, and it can get very discouraging for her...but she does not spend alot of time having "pity parties" as would be expected. She is stronger spiritually and emotionally than you can ever imagine!
We were talking today about the freedom she has to serve God in such a unique way. We are currently preparing to raise the funds to go on a mission trip to Canada! She doesn't have to worry about asking for vacation time...she has the freedom to just go (with me). As difficult as it is for her at times to have to spend every minute of every day with me we do enjoy the opportunities God has given us to serve Him together.
We continue to covet your prayers as Krissy is dealing with headaches at times and the area of the implant has a knot (the doctor tells us is normal for this type of surgery). She is also having some problems with her vision, believed to just go along with getting older; however, she will be seeing an eye doctor at UVA that is aware of the implant. As I mentioned , her next doctor's appt is on May 5 -6 (neuropsychological testing on the 5th and her neurology appt and eye appt on the 6th). The trip to Virginia is long and tiring and expensive, so keep us in prayer as we travel.
God is good and continues to watch over us . . . and that's enough for us!
Tuesday, April 15, 2008
Subscribe to:
Posts (Atom)