I apologize for "slacking" off on keeping you posted...actually there has just not been a whole lot to tell in the last couple of days. We are on day 13 here at the hospital and when the doctor visited this morning he told us they really need to see more seizures. Go figure, 6 days without her seizure medicine and she has only had 3 seizures . . .total. . . and at home she has many in any given day. So, we are somewhat baffled as to what is keeping the seizures from happening. She has not felt real well today; severe headache, wanting to sleep more and looking a little pale. The nurse says all her vitals look good, so maybe it is just downright homesickness.
The doctor has shared with us that they are still concerned about doing the second surgery and removing a part of her brain. They need to see some of the other seizures to make sure that it is possible to take out the seizure area without damaging a good part of the brain. They do not want to leave her unable to use her arm or something of that nature. I am very thankful that the doctors are being so thorough, however it is disappointing to think that this may not go the way it was originally planned. One of the doctors did remind me that if this surgery is not possible that Neuropace is still going to be the other option. I have to keep reminding myself that God is in control and He does have a plan for Kristina and it will all be worked out in His time. The hardest part is knowing that Kristina may have to have a second surgery with no relief from the seizure disorder. We would not be able to have Neuropace implanted until a few months later. We are staying optimistic! Please continue to pray that the doctors will see what they need to see to make the wisest decision. You know I heard on a Christian movie last night that "if you want to make God laugh, tell Him your plans." I have thought about that alot today . . . cause things have not quite fallen into my nice little box of plans.
Last night I had the opportunity to sleep in a hotel bed while Jess stayed with her sister. I am very thankful for the chance to get a good night's sleep and be able to stretch out! It was very good for the three of us to be together for the weekend. We are so used to being a threesome!
We had some good friends visit us today, and that was a great joy! We had not seen them in a very long time and they actually now live two hours away from Charlottesville. We realize how hard it is for anyone to come up here due to the distance . . . so it was a great treat for us!
I was reading the book "Hugs of Comfort" today before I took it to our friends up on the eighth floor. There were many things in the book that stood out to me . . . .but today this touched my heart.
"God may be invisible, but He's in touch. You may not be able to see Him, but He is in control. And that includes what you've just lost. That includes what you've just gained. That includes all of life - past, present, future." ~ Charles R. Swindoll
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2 comments:
Hey Guys!
This is Liz (Strand) Wickham keeping up with you from afar. We'll be finishing our time in Korea this summer and be returning home. We were recently sent your web blog and we've been keeping up with your surgery story ever since. We love you and have been praying for you for years. We're so glad to know God is providing a way for healing, and just as much that you have been such a blessing to all those you've encountered and ministered to while in the hospital. You are touching lives forever in ways only time will tell. We just wanted to send our love and let you know that Christians around the world are praying for you!
Love,
Liz & Raymond
Thanks for sharing the quote, muchly appreciated!
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