It has been almost four weeks since we left the hospital (and her hair is growing back) and Krissy had her first follow up visit today. She had a appointment this morning with the surgeon. He was very excited about seeing how she is healing and was almost "giddy" about some of the upcoming posibilities. The first thing he shared with us were some pictures...of the CT scan done with the grid in place and of her brain during the surgery. Yep, color pictures of her brain! He did ask to make sure we would not get sick when he showed us . . . however, he was thrilled to explain them to us! The pictures showed where the grids had been placed and he was able to show us exactly where the seizures were coming from. We were also able to see the scar tissue that has been the big issue. It showed up as a grey mass in the midst of so much red tissue. It was fascinating! (sorry the doc didn't let us have the pics to show)
The doctor shared that the UVA team will be having a video conference with the Neuropace team (in California) tonight to discuss Kristina. He felt very comfortable that she was a candidate for the neuropace and all the mapping and work that was done during her time in the hospital was now going to pay off. The team at UVA will be showing the neuropace team where they feel the device and electrodes will need to be placed to be most effective. On the picture of the brain he was able to show us exactly what the procedure will be. He told us there will be electrodes placed during another surgery and the device will replace a small square of her skull underneath the skin (kinda like a metal plate.) We should hear from one of Krissy's doctors tomorrow or Monday with a game plan.
We are feeling very good about this step and feel God is leading us in this direction. Kristina has not had a seizure since we left the hospital . . . however, the doctor told us this was a kind of "honeymoon" stage that sometimes happens after surgery. And wouldn't you know it . . . .she had two small glitches (a type of seizure where she just pauses for a few seconds) on our way home today!
Upon checking the mail today when we arrived home there was another appointment in Va on April 10 with the research team. So, I guess we are headed back pretty soon. I will keep you all posted as we receive news.
Once again, we thank you all for your prayers and concern during this journey in our lives!
3 comments:
That is great news!! Sounds like there is a plan in action now. I know you are very tired of all the traveling but I'm sure the end of the road will make it all worth it. Thanks for the pictures. It is great to see your smiling face. I hope the rest of your journey is as rewarding with adventure as the first part has been. Don't forget that the biggest adventure is facing each new day knowing that God has something great instore for you!!! tc my friends and I hope to see you soon!! I love you all
Absolutely great news, I agree with miss snapper!
I'm excited, are you? Love the pictures too! Dollie... I hear you were not in the picture taking mood that day... um... you shoulda been!
hey there!! love the pictures...can't wait to see you guys!! love ya!
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