It was a very long day as we waited in anticipation of the upcoming surgery. One of the eeg techs came in to remove all the wires and connections from Kristina. She felt like she was easily 50 pounds lighter once all the "stuff" was removed. Heather took a picture of Paul working on Krissy that she will later post for all to see. Originally it was planned for around noon (she was 3rd in line for the operating room). However, she was not called in until 3:30 pm and finally went into surgery around 5 pm. She was out and moved into ICU about 7:30 pm. The doctor told me the surgery went very well and he was able to get some more pictures of the grid and mapping for future use when it comes time for the neuropace. He feels the recovery will go well and quickly.
I was able to see her shortly after surgery and she was in alot of pain. She woke up alot quicker this time; before they had all the pain meds in place. She was also awake for the air tube to be removed from her throat . . .so she was not a happy camper. They will be keeping her in the ICU tonight because of how late she came out of surgery and will be moved back to her same room tomorrow. We are still uncertain about how long we will be here . . . depends on how quickly she starts feeling better. We are looking forward to getting home and being able to sleep for days! (lol)
We appreciate all the love and prayers for us! We have felt God's hand comforting throughout the day!
During our time of waiting for surgery, we were playing games with Jess, Rob and Heather (who came to be with me during the surgery). We also had the opportunity to meet our newest roommate, an 11 year old girl who is having some type of "event" that may be related to seizures that needs to be video monitored. I had a chance to chat with her mom and discover more about what is happening with her daughter and share Kristina's experiences with the doctors here at UVA. While the gang went out walking for awhile, I was able to share with this mom all the fears, uncertainties and positive experiences we have had since we began to come to UVA with the goal of finding a solution (or treatment) for Kristina's seizure disorder. I am once again amazed at how God put us in the right place at the right time to give us both the companionship with something in common.
Kristina has been a real "trooper" through all of this and I am very proud of how her faith has continued to make her strong! Even at those times when fear tries to overwhelm her...she relies on God for the strength and comfort only He can provide.
The Lord is my strength and my shield; my heart trusts in him, and i am helped. My heart leaps for joy and I will give thanks to Him in song. Psalm 28:7
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4 comments:
I'm so glad everything went well. I miss you all, and I'm glad you're finally going to be able to come home. I love you! Let Krissy know that at least she now has her own tv show!!! :)
I am glad it went well.I am so sorry she was awake for the tube removal.That must have been awful.I pray she heals quickly and you gals get to come home. I am sorry things did not go as planned,But we know God has his plan and we have to leave it to him.Love, Rickie
Good Morning, I've been reading your blog daily and sending it to Brandi as well. I'm so glad we have a way of staying in the "loop". I'm thankful that Krissy came thru surgery well and is on the road to recovery. I know it takes a lot of strength, courage and tons of faith to endure everything and stay strong in the face of adversity but you have all managed to do so with God by your side. I admire you all tremendously and commend you on your unwavering trust in God. He truly does have our best interest at heart and will see to it that it is accomplished. God bless you and we can't wait to see you back home resting comfortably.
Liz
God's ways are not our ways but praise Him they are perfect and higher than we can imagine. I know the days are long and tedious in a hospital setting. But please remember to take this precious time that He has given for you two to be together. Sharing memories between mother and daughter. Sharing memories with those you come in contact. Remember to bask in His glory everyday...wherever or through whatever means He sends it to you.....and know that He alone is in control. Its not by chance that you are in VA during these God-ordained days. Think about it....God's mission for you in VA seems to have been to carry your light and let it shine in VA!! What an awesome testimony you both have received of being able to share His light during your stay.
I pray that you both have received much needed rest throughout last night. Remember, our family is praying for you and take hold of our family's life verse....."Be still, and know that He is God!!" Love and Prayers!!
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