It has been a very interesting day with lots of events going on with Kristina. She started her day off very well and mid-afternoon she began to experience something new. While on the phone talking her vision became blurry and her right hand was numb. She was unable to continue talking and could not form her words. When she shut her eyes they began to flutter. This happened several times during the course of the afternoon and evening. She had one of the events while one of her doctors was standing in front of her bed. He felt this was a new type of seizure she was experiencing. With so much trauma to the brain he felt the brain has probably restructured how the seizures happen. We have had several doctors check up on her during the course of the day and they all agree that it is a seizure event. Now that she has learned to relax when it happens it goes by much quicker, however the first couple of times today she became very frantic and scared both of us. But all is good! We will adjust to this too.
The doctors did share with us today that Kristina is being discussed with several different boards (epilepsy board, neuropace board, surgery board) and they are all looking for the best solution for Krissy's case. That does give us comfort that they are working hard to find a way for Krissy to be seizure free.
There is still no doubt in my mind that God brought us here for this time and has a plan for Kristina. I know He is working through the doctors and nurses and is working in us.
I have had the chance to meet the family of my newest roommate. Our roomie is an 11 year old girl that is having seizure events (along with some other medical issues). She was born in China and was adopted by her mom here when she was 5 months old. Her mother is a single (never been married) licensed counselor that primarily works with children and their families. The mom was telling me today all the difficulties she had in finalizing the adoption and about her trip to China to receive her little girl. She told me she knew it was of God that this was the child He wanted for her because she had already selected a name and when she was receiving the baby a man told her the child's Chinese name. The name she selected meant "by the sea" and he told her the Chinese name meant "by the sea". She said this was no coincidence in her book . . .because there is normally no reason for them to have named the child in China . . so it was very unusual for that to happen.
This is their first visit to the hospital for her daughter and they are in the very beginning stages of her seizure and EEG irregularities. She told me she felt we were together so she could learn from us what to expect and how to deal with the issues they may face in the future. She listens to how Kristina and I deal with these new seizures and what the doctors talk to us about. Then she asks me questions. I have tried to be very encouraging to her, as I know the fear she must be feeling at this new stage in her daughters medical conditions. Yet, I tell her alot about how we have handled the years of seizures and how God has brought us through it.
I sit back tonight and think about all the people that God has placed in our path and all the things I have learned about life and love from each of them. We have made some very good friends; linked together not only by our siutations and time in the hospital; but by the love of Christ. I received a call from Rusty (his and Nancy's mom was the one with brain cancer) on the day of Krissy's surgery. He called to let me know he and his church were praying for Kristina and our family and would continue to keep her on their prayer list and check up on us until she was through with the entire ordeal to rid her of seizures. I had already seen Nancy the day before and she shared with me that her mother had died during the night. Her brother was already back in Florida and they would be having her funeral there. In the midst of all that was going on in their lives he still thought to call and check on her. Amazing how God uses us if we just allow Him to.
Once again, I thank all of you that have been praying for Krissy and all the encouraging words, and notes and cards. May the God who gives endurance and encouragement give you a spirit of unity among yourselves as you follow Christ Jesus, so that with one heart and mouth you may glorify the God and Father of our Lord Jesus Christ. Romans 15:5-6
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4 comments:
Hi Dollie and Krissy,
I am so glad you have this journal to keep us informed. Krissy you are still just as beautiful with a fuzzy head. You amaze me! With all the ups and downs you are experiencing, your smile is just as big. You are in our thoughts daily and we continue to pray for you.
Love you, Theresa, Jack, Eric, Nikki and Sarah, Mema and Poppy
New adventures, just think of all these doctors, their years of preparation--the individual lives that they had coming together at this hospital, at this time because you are there. Very cool!
You have got to have been made special, to endure all that you have. And, the road that you have traveled years ago have all placed you here and now at a specific time in your own and the lives of all that you have touched. You are continuing to touch us all. None of this is coincidence, you have met a specific need in each of the families that you have touched. Your "fingerprint" was left on each of them. You have touched me and my family. Each of you have been who and what every person needed in their situation. Think about it... is there anything on this world that is not in God's control?
Psalm 73:28
But as for me, how good it is to be near God!I have made the Sovereign Lord my shelter,and I will tell everyone about the wonderful things you do.
You have been and are continuing to bear faith and witness of all you have been through and showing the strength to yet endure what He has for you. We all Lovr you guys and are eager to see your smiling faces. Your extended family is waiting to see you and hear the stories of your adventure. I hope you have taken goo notes, lol. Hurry up and wait on the Lord.
Hey guys! finally get to sign on...i still think that you are beautiful! regardless...hope that all is well with you both...praying for you and missing ya like crazy! love you!
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